Ignorance is not bliss – #51

“disease manifests and persists in direct relation to the quality of your inner landscape. the thing to understand is that the thought of dealing with disease, no disease, diminishing–fading–healing disease is in essence no different than the thoughts of disease and death themselves. you need to remove the concept of disease, as much as you are able, completely from your inner and outer landscape, thoughts, emotions, actions, and environment. don’t talk about it, think about it, write about it, join groups that worry about it. don’t concern yourself with it and all its endless hows, instead all your attention can go to living the life that you want, disease free, where you wouldn’t even need to be thinking and talking about it because it is not a part of your life.”

This is a quote from a comment posted on a recent entry that I have been really thinking about. My disease came when I wasn’t thinking about it. I wasn’t thinking about it, talking about it or worrying about it and it was still there doing damage.

I think ignoring or forgetting about disease borders on irresponsible. I have talked to people with MS who do just that…they ignore it. They ignore it and don’t treat it. It’s like an alcoholic diagnosed with liver disease who continues to drink or a smoker with lung cancer who still smokes. The disease does not go away. In fact, with MS the statistics are grim. Left untreated, there is a 50% chance that relapsing remitting MS will turn to secondary progressive MS in ten years. There is a 90-95% chance that it will progress after 25 years. I am unwilling to accept those numbers when I know I can make changes by addressing the problem. If I have had MS for 10 years then my chances of being healthy in 15 more years are not good without attention to this disease and action to reverse it.

See this post Why Avonex? #10 to understand why I am not willing to ignore or forget that I am fighting MS. I will continue to think about it, talk about it, join groups to learn more about how to fight it and always keep writing about it.


4 responses to “Ignorance is not bliss – #51

  1. Thats why we are all here to help you not ignore.


  2. i don’t know in what context that quote was made, but it makes no sense. you can’t think yourself into having multiple sclerosis. that’s not even worth responding to, in my opinion.

    but what i will say is that even if it were somehow physically beneficial to ignore the disease once you have it, i don’t see how that is possible. i would love to go one day without being reminded that i have ms. even on a good day i have parathesias in my leg that remind me. i agree with you, courtney, that it is not healthy to ignore the fact that one has ms, but i think it would be great to ignore it and not think about it just for one day. unfortunately, i don’t have that luxury.

  3. oops, that last comment was by me, anonymous jen.

  4. bullshit.
    the luxury is yours for the taking.

    you’re both having perfectly normal reactions to my rather unorthodox suggestion; which i think is a good sign.

    i don’t advocate ignorance, it most certainly is not bliss. i am not suggesting that you merely deny the reality that exists in your lives and turn the other cheek. happiness does not arise out of self-deception. (not lasting happiness anyway)

    however, you can begin to examine how you are handling this reality, and in my opinion, while it may surround you with a wealth of knowledge and melody of support and encouragement, it certainly is not the road to faster recovery.

    i deal with cancer. it’s more prevalent and remarkably deadly. however, no less susceptible to the power of intention.

    of course it is not that you thought your way into this situation consciously. nobody wishes disease upon themselves. but i can not be more emphatic about the fact that all your circumstances are a result of your own doing. the state of your mental and emotional health prior to your diagnoses, the pressure you put on the chain, the stress you allowed to get to you, your fears, your thoughts, your beliefs, these are the reasons you are here.

    it is not easy (many people refuse completely) to admit that bad luck had nothing to do with. but when you open yourselves up to that possibility, the ramifications are glorious. it means that whatever thought has done to you, it can be undone, through a shift in your awareness.

    do not ignore your disease. go to your appointments, medicate, meditate, and don’t stop treatment. what needs to change are your attitudes. you claim to be brimming with positivity, yet you celebrate your disease; and then proudly defend your right to fight it by knowing all that there is to know about it!

    you are inundating the concept of multiple sclerosis into your lives. you are fusing it with your personalities. it it slowly becoming a weekly, daily, hourly aspect of everyday living. charged and empowered by your endless thoughts, conversations, meetings, feelings, and actions. i of course recognize that ms IS a part of your everyday life, what you simply don’t recognize is that it doesn’t have to be, you make that choice for yourself.

    attempt discretion. only talk of it when you must, like those treacherous papers you would have to write in school, get it done, but don’t talk about it. like the affair you may or may not have experienced: something you did with consistence and intent, but it is not the business of everyone to know. do not celebrate the disease. it matters little whether you are thinking get ms or reveres ms, because you are in fact still thinking ms.

    courtney, it’s a beautiful name, i can sense that you have both the willpower and wanting to do and make anything that you want. start by remodeling the psychological framework in which you are trying to recover. concentrate, talk, and write MOST about that which you want, not that which you wish to go away.

    you are a wife, a mother, a daughter, a sister and an advertising sales rep. you entertain and collect art. you travel and spend time with family and friends. you are busy. life is short. and it’s getting shorter.

    you shouldn’t have time for BS.

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