Sharon left a comment on my blog yesterday and I can’t figure out how to email her. Her comment couldn’t have come at a better time. I feel so great that I cannot imagine treating my MS at the moment. I have been thinking that way for several days and finally I called Dr. Foley’s office to schedule my first infusion. I know better. I know I won’t feel this way forever. I know I have a chance of feeling even better, longer with Tysabri. It wasn’t until I was typing this email to Sharon that it really clicked for me. Thanks Sharon!
Thanks for your note. Avonex and Rebif were both horrible for me. In fact I attribute most of my sickness this past year to the drugs and not to MS. I talked with my Neuro about LDN and was strongly considering it. Unfortunately, there is no clinical data that it helps. Of course I take extra ginger and turmeric and there is no clinical research there either but I feel without a treatment like Tysabri, things will go downhill for me. I read about so many people using it as a last resort drug and that isn’t what is was designed for.
Initially, I had reservations about Tysabri and still from time to time I think, “I feel so good now, why be on any drugs…”. Here is what made me decide to take action…
A. I cannot tolerate the other MS drugs
B. After 10 years, 50% of untreated Relapsing Remitting MS turns to Secondary Progressive
C. After 25 years, 95% of untreated Relapsing Remitting MS turns to Secondary Progressive
D. There has not been ONE Death or ONE case of PML in an MS patient using Tysabri as a mono therapy.
Keep in touch and let me know how you are doing. If you are ever considering Tysabri and want the facts, check out Laurensblog She has great links and really knows the facts about Tysabri.