I keep reading about struggles to obtain Tysabri. I guess it took me a while to get to this point but most of my delays were insurance related. I chose a doctor who wasn’t a provider with my insurance company. I knew I would have to pay more to see him but I also knew that I could not afford not to have him as my neurologist.
So what do I love about Dr. John Foley? I love that he is honest with me. I love his compassion. I love that anyone I have talked to that knows him, loves him too. I love that he wants me to be an active part of choosing how I treat my MS.
As far as accessing Tysabri, the stories I hear are about patients traveling several hours for infusions, and the touch centers being unorganized. I also hear about patients who have neurologists that refuse to present Tysabri as an option. I feel fortunate that my neurologist helped me to analyze the risk-reward scenario of taking Tysabri and agreed that it was the right choice for me. I feel fortunate that my neurologist finally picked up my insurance so that Tysabri is an affordable option. I am especially thrilled that the Touch Center that I have to go to is at Dr. Foley’s office. (about 15 minutes) from my house.
So yes I had to wait a bit, but as of Monday at 1:30 p.m. Tysabri will be my new MS treatment.
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