I had my 27th Tysabri infusion on Wednesday. I typically have my infusions in the morning and then take the afternoon off and go to sleep early. I typically wake up feeling either ready to go or almost ready to go!
This past infusion, I was scheduled for late afternoon. I didn’t get home until after 6pm. When I woke up Thursday, I was draaggggging! I need more recovery time from the infusion and will aim to always have a morning appointment.
I was looking through a journal that I kept when I was first diagnosed and taking Rebif. I am sure my blog entries from that time are similar but wow, it was rough! While I tried to stay upbeat, the side effects that I experienced made it tough.
Some of the things I said:
“Rebif Sucks – Enough said!”
“I felt too tired to go for a walk”
“MS is here today, Tingly face and right arm are an annoying reminder”
“With a Rebif hangover, the hike was really hard”
“Headache and Neck Pain kept me out of work most of the day”
“I am shaking inside”
“Anti – Nausea Meds are kicking in”
“I feel drugged”
“I want to disappear and forget about everything. Forget about a positive attitude, forget about fighting, forget that my neck hurts, forget that my head hurts, forget I am tired, forget that there is a needle in my arm”
In between all of those observations were things like:
“I had a great massage today”
“So glad the weekend is here”
“Went to a football game, it was a blast”
“Getting up early tomorrow to ride”
“Had a great early morning walk with Mark, Bailey and Guinness”
“I am scared but will fight.”
“I will find a way to be healthy and strong so I can raise her to be healthy and strong”
“Tysabri is the answer if I don’t want to be sick anymore” – Sept. 15th 2006
“I am fully responsible for my own great health. My daily habits create my great health”
“I feel amazing and hopeful”
While I don’t have to live with the horrible side effects of Interferons anymore, I do sometimes have bad days or a bad attitude.
The good stuff far outweighs the bad….then and now.